Health Data Permissions and Privacy

Health data permissions and privacy

Resources on privacy and security

Some members have the right to tell Aetna to release some of their health data to third-party apps. 

Here are some educational materials. You can use them to help decide who to share your health data with.

Learn about the payer to payer data exchange

Protect the privacy and security of your health data

Take care when choosing which apps you share your health data with. Health data can be very sensitive. We don’t control how third-party apps use or share your health data. We don’t review third-party apps or their privacy and security standards for your health data.

We recommend choosing apps with strong privacy and security standards. Always read apps’ terms of use first. They should have an easy-to-read and find privacy policy. This should tell you how they plan to use your data. Some apps may share your health data with other third parties. If they don’t have a privacy policy, think again about using the app.

Things to think about when choosing a third-party app to receive your health data

You want to make sure an app’s privacy policy answers these questions.

• What health data will this app collect?
• Will this app collect non-health data from my phone, such as my location?
• Will this app store my data in a de-identified or anonymized form?
• How will this app use my data?
• Will this app share my data with other third parties?
• Will this app sell my data for any reason, such as advertising or research?
• Will this app share my data for any reason? If so, with whom? For what purpose?
• How can I limit this app’s use and disclosure of my data?
• What security measures does this app use to protect my data?
• What impact does sharing my data with this app have on others? Does this impact my family members?
• How can I access my data and correct wrong info saved by this app?
• Does this app have a process for collecting and responding to user complaints?
• If I no longer want to use this app, or if I no longer want this app to have access to my health information, how do I stop the app from getting my data?
• What is the app’s policy for removing my data once I end access?
• Do I have to do more than just delete the app from my device?
• How does this app tell users about changes that could affect its privacy practices?

What is HIPAA?

• The Health Insurance Portability and Accountability Act (HIPAA) is a federal law. One part of it helps protect personal health information. The U.S. Department of Health and Human Services (HHS) Office for Civil Rights (OCR) enforces the HIPAA Privacy, Security, and Breach Notification Rules, and the Patient Safety Act and Rule.
• You can find HIPAA FAQs for individuals from HHS

Who must follow HIPAA?

“Covered entities” must follow HIPAA rules. This can include:

• Health plans:
  • ­   Health insurance companies
  • ­   Health maintenance organizations (HMOs)
  • ­   Company health plans
  • ­   Certain government programs that pay for health care, like Medicare and Medicaid
• Many health care providers that do business electronically. For example, if they bill your health insurance electronically. This can include:
  • Doctors
  • Health clinics
  • Hospitals
  • Psychologists
  • Chiropractors
  • Nursing homes
  • Pharmacies
  • Dentists
• Health care clearinghouses

“Business associates” who provide certain services for covered entities must follow parts of the HIPAA rules. This can include:

• Billing companies
• Health care claims processors
• Companies that store or destroy medical records
• Those that help administer health plans

Many entities that have your health info don’t need to follow HIPAA rules. These may include:

• Life insurers
• Employers
• Workers compensation carriers
• Schools and school districts
• State agencies
• Law enforcement agencies
• Municipal offices

You can find more info from HHS about patient rights under HIPAA and who must follow HIPAA

Do third-party apps have to follow HIPAA rules?

HIPAA doesn’t cover most third-party apps. Instead, the apps fall under the authority of the Federal Trade Commission (FTC) and the protections of the FTC Act. The act protects against deceptive acts. For example, if an app shares personal data without your permission, despite having a privacy policy that says it will not do so.

You can read more from the FTC about mobile app privacy and security

How do I file a HIPAA privacy complaint?

If you think your HIPAA privacy rights were violated, you have options:

• Call us toll-free at the Member Services number on your member ID card.
• Write the Aetna Privacy Office at the address below:

HIPAA Member Rights Team

Aetna Inc.

P.O. Box 14079

Lexington, KY 40512-4079

• Write the Secretary of the U.S. Department of Health and Human Services
• Learn more about filing a complaint with HHS OCR under HIPAA
• File a complaint with HHS OCR using the OCR complaint portal

File a complaint if you think an app has misused your data.

• File a complaint with the FTC using the FTC complaint assistant